Living in a "limbo" was commented by blogger Dana in one of my posts. I thought about it and all the delays of volunteering or traveling have been set by this "limbo."I want to find different ways to cope because of my powerlessness to this thing called infertility or the tragedy of losing a baby (Calvin's mom talks about "powerlessness" in her blog). Some of the things I would like to do as a means of coping are not beneficial for TTC. For example, whether I can realistically make it or not, I would like to participate in a boot camp just to get all my anger and frustration out!!! Right now it's probably not a good idea as I am still going through treatments. I take it day by day... trying out different recipes for cooking.... enjoying time with my hubby for his summer off... reading...
All my summers were supposed to be enjoyable. However, we were both financially unable to plan a nice getaway and medically feeling protective of possible pregnancies. I like the feeling of hopefulness when I actually go through with IUIs. I DO NOT like the feeling of disappointment when I stumble upon medical obstacles or another negative preg test. I am quite tired of this "limbo." What really goes through my mind in this journey is the PLAN. Not that our plans have ever gone through but I mentally start calculating how many more cycles I want to do the IUIs and if something goes wrong, I wonder what it will take to pursue inter'al adoption. Yes, this is overwhelming every time I do this. I say all this just to express how depleted I feel from not knowing the answers. I pray that this summer will be the last summer of being in this transitional state. At this moment, I don't think I can go through another long summer of uncertainties.
So another July 4th is coming up. The first July 4th was the hardest without Joey. I would like to get out of town even if it's not so far. I would like to celebrate what we still have even while missing Joey and Juno. I still have my little furbaby and my dear husband.... we have each other through the hard times like this.
Life after losing my daughter Josephine Ann Lee to pPROM (Preterm Premature Rupture of Membrane)...
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Tuesday, June 28, 2011
Monday, June 20, 2011
Baby Juno
Today was the due date for my miscarried baby. June 20th. Today is the day I once again "could've" had a living child if the pregnancy went perfectly. My husband had a feeling the baby could've been a boy but of course, we will never know until we see "him" one day. I wanted a unisex name and thought of "June" from the due date then "Juno" as a nickname.
To medical professionals he was merely a blighted ovum. An embryo that didn't quite make it. A chromosomal mishap. I even tried to make light of this past miscarriage from November but I can't get past the fact how much we wanted the baby. The baby stopped growing and we didn't get to see the baby. I only remember the empty sac from the sonogram. How could a baby just not be there? I know some ladies keep every pregnancy tests but I never bothered to even though getting a BFP is truly rare and precious to me. The picture of Juno's positive BFP is all I have left of him. He really did exist. Does anyone care? I may not cry as much as I do for Joey but Baby Juno was loved and dearly wanted by us. I hope that's all what counts for a miscarried baby to be as valid as any other baby.
In a perfect world I would be holding my two children.
To medical professionals he was merely a blighted ovum. An embryo that didn't quite make it. A chromosomal mishap. I even tried to make light of this past miscarriage from November but I can't get past the fact how much we wanted the baby. The baby stopped growing and we didn't get to see the baby. I only remember the empty sac from the sonogram. How could a baby just not be there? I know some ladies keep every pregnancy tests but I never bothered to even though getting a BFP is truly rare and precious to me. The picture of Juno's positive BFP is all I have left of him. He really did exist. Does anyone care? I may not cry as much as I do for Joey but Baby Juno was loved and dearly wanted by us. I hope that's all what counts for a miscarried baby to be as valid as any other baby.
In a perfect world I would be holding my two children.
Lost you before I found you
Gone before you came
But I love you just the same
Missed you before I met you
On earth we never can
But in heaven we’ll meet again
Chorus from the song "Still" by Gerrit Hofsink
Saturday, June 4, 2011
Right Where I Am: 1 year 7 months, 3wks and 5 days
I don't think I have responded to a theme or maybe I did one time with another blog. For some reason, I missed out on still life with circles blog until I dropped by out of curiosity. I was attracted to its posts and especially the topic. The shared topic is just like the title says, right where we are from the beginning of grief. As I ponder upon this, I also remember today also happened to be the very FIRST BFP I ever had and that was my precious little girl, Josephine (Joey) - June 4, 2009. I am not good at remembering dates but my husband is.... so he remembered. He talked about what it would've felt like to walk down the aisle with Joey as we watched "The Father of the Bride" yesterday. He woke up this morning playing with our little dog on our bed and he thought about what it would be like to have his Joey wake him up in the morning. She would be 19 months old.... I'm so out of the loop with babies' developmental stages but I am assuming she would've been walking and saying some words or phrases. Every time I miss her, I imagine myself just holding her so tight...
The healing process would have been different if we had our rainbow baby by now. I think about where I would be if my life went differently. Where would I be if the miscarried baby could've made it to the due date of this month. No, I don't think I would've ever forgotten my daughter or stopped grieving. I think I feel more pain because of this infertility struggle. It is quite potent when you mix infertility and grief. It stings a little more every time you miscarry like I did back in November. Facebook has been the worst enemy. I feel a stab at my heart's desire and brokenness every time I see a picture of someone's newborn on FB. Trust me, I have stopped reading many newsfeeds but it finds a way to pop up through someone else's comments. "Deactivate" has been the best way to go.
My hubby and I have isolated ourselves from many friends or acquaintances. Why? Most of them have kids and what else is there to talk about with others besides their children. John's coworkers are getting pregnant and I feel increasingly "left behind." This burden of feeling "left behind" has never left me since the early years of infertility.... I thought I would become immune to pregnancy news, pregnant friends, pregnant strangers, pregnancy commercials, etcetera, etcetera one of these days.... But no, it doesn't just simply vanish and go away.
Four and a half years of TTC, sometimes I just say five years, I recall the summers of avoiding church activities or vacations thinking I would get pregnant "this month." Were those long summers just wasted? So here I am trying to be normal again as I feel ready to hang out with others. They will get to know the masked version of John and I if they don't know our story. We need friendships but not just any kind of friendships. We need friends who accept us where we are emotionally, who don't preach, or offer unsolicited advice. My defenses are still high due to some negative comments from the past. I am afraid to be transparent with those who never walked through infertility or loss because too often I would hear things I don't want to hear. Our social life has slowed down quite a bit. Will this all be turned around just because we have kids in the future? Maybe; maybe not.
By now, I have processed my guilt and have come into acceptance that Joey is not coming back. I wish I had all the medical answers I do now back in 2009. I also bounce to the stage of shock once in a while; I ask myself "Did I really lose my daughter and a miscarried baby?" It's surreal. It's unfathomable. I long for Joey but this year I find myself smiling more than crying at her cute footprint in my living room. Bottom line is I am at a place where I long to hold Joey in my arms and where I yearn to have rainbow children soon. I have one foot in the past and one foot in the future.
The healing process would have been different if we had our rainbow baby by now. I think about where I would be if my life went differently. Where would I be if the miscarried baby could've made it to the due date of this month. No, I don't think I would've ever forgotten my daughter or stopped grieving. I think I feel more pain because of this infertility struggle. It is quite potent when you mix infertility and grief. It stings a little more every time you miscarry like I did back in November. Facebook has been the worst enemy. I feel a stab at my heart's desire and brokenness every time I see a picture of someone's newborn on FB. Trust me, I have stopped reading many newsfeeds but it finds a way to pop up through someone else's comments. "Deactivate" has been the best way to go.
My hubby and I have isolated ourselves from many friends or acquaintances. Why? Most of them have kids and what else is there to talk about with others besides their children. John's coworkers are getting pregnant and I feel increasingly "left behind." This burden of feeling "left behind" has never left me since the early years of infertility.... I thought I would become immune to pregnancy news, pregnant friends, pregnant strangers, pregnancy commercials, etcetera, etcetera one of these days.... But no, it doesn't just simply vanish and go away.
Four and a half years of TTC, sometimes I just say five years, I recall the summers of avoiding church activities or vacations thinking I would get pregnant "this month." Were those long summers just wasted? So here I am trying to be normal again as I feel ready to hang out with others. They will get to know the masked version of John and I if they don't know our story. We need friendships but not just any kind of friendships. We need friends who accept us where we are emotionally, who don't preach, or offer unsolicited advice. My defenses are still high due to some negative comments from the past. I am afraid to be transparent with those who never walked through infertility or loss because too often I would hear things I don't want to hear. Our social life has slowed down quite a bit. Will this all be turned around just because we have kids in the future? Maybe; maybe not.
By now, I have processed my guilt and have come into acceptance that Joey is not coming back. I wish I had all the medical answers I do now back in 2009. I also bounce to the stage of shock once in a while; I ask myself "Did I really lose my daughter and a miscarried baby?" It's surreal. It's unfathomable. I long for Joey but this year I find myself smiling more than crying at her cute footprint in my living room. Bottom line is I am at a place where I long to hold Joey in my arms and where I yearn to have rainbow children soon. I have one foot in the past and one foot in the future.
Monday, May 16, 2011
Letting Go
H.O.P.E.
Once again I was ready to TTC after recovering from the TAC surgery. It was scary to try again with the added risk of a C-section due to the TAC procedure.
Thankfulness
A dear BLM from my support group offered her follistim cartridge for free. She was pregnant and didn't need it anymore. It was encouraging.
C-O-N-T-R-O-L
I wanted this IUI cycle to be PERFECT. Even though we can do the drills with our eyes closed by now I was still struggling for control. I panicked for a moment when we realized the follistim pen was NOT in the fridge like we thought it was supposed to be!!! My panic was relieved when we discovered that refrigeration was not necessary once the cartridge was pierced when my hubby googled it.
C-O-N-T-R-O-L --- I wanted to tell God that this HAD to be it. Haven't we waited long enough? Haven't we suffered enough?
Dis a point ment
After thinking everything was going smoothly, there was a long eerie pause coming from my good ol' sono tech. He is not the type of guy that talks much but seeing him for 2 years off and on, I have picked up on his gestures. When I hear him clicking on that sonogram machine and scanning repeatedly, I know SOMETHING is wrong. The longer he takes on that ultrasound, the more anxious I become. After he released a frustrated sigh, he told me my body had already ovulated. There was not going to be an IUI this cycle.
Frustration
I was ready for another IUI cycle today. The sonogram showed 3 cysts on my left ovary. One is acceptable for a treatment but more than one required a break. The medications stimulate more follicles and when those eggs are not released they expand into liquid filled cysts. I was told to wait it out since they typically go away after one cycle of break. I don't know if I am more frustrated or relieved. Relieved that I don't have to spend money. Relieved to take a break from those darn hormones which exhaust me physically and swallow me into a barrage of emotions. We will try naturally this cycle. I will let go of this self-defeating battle between me and mother nature. Let go, destress, focus, keep going, Patty.
Once again I was ready to TTC after recovering from the TAC surgery. It was scary to try again with the added risk of a C-section due to the TAC procedure.
Thankfulness
A dear BLM from my support group offered her follistim cartridge for free. She was pregnant and didn't need it anymore. It was encouraging.
C-O-N-T-R-O-L
I wanted this IUI cycle to be PERFECT. Even though we can do the drills with our eyes closed by now I was still struggling for control. I panicked for a moment when we realized the follistim pen was NOT in the fridge like we thought it was supposed to be!!! My panic was relieved when we discovered that refrigeration was not necessary once the cartridge was pierced when my hubby googled it.
C-O-N-T-R-O-L --- I wanted to tell God that this HAD to be it. Haven't we waited long enough? Haven't we suffered enough?
Dis a point ment
After thinking everything was going smoothly, there was a long eerie pause coming from my good ol' sono tech. He is not the type of guy that talks much but seeing him for 2 years off and on, I have picked up on his gestures. When I hear him clicking on that sonogram machine and scanning repeatedly, I know SOMETHING is wrong. The longer he takes on that ultrasound, the more anxious I become. After he released a frustrated sigh, he told me my body had already ovulated. There was not going to be an IUI this cycle.
Frustration
I was ready for another IUI cycle today. The sonogram showed 3 cysts on my left ovary. One is acceptable for a treatment but more than one required a break. The medications stimulate more follicles and when those eggs are not released they expand into liquid filled cysts. I was told to wait it out since they typically go away after one cycle of break. I don't know if I am more frustrated or relieved. Relieved that I don't have to spend money. Relieved to take a break from those darn hormones which exhaust me physically and swallow me into a barrage of emotions. We will try naturally this cycle. I will let go of this self-defeating battle between me and mother nature. Let go, destress, focus, keep going, Patty.
Friday, May 6, 2011
As Mother's Day approaches...
My sadness lingers as Mother's Day approaches; perhaps my pattern is grieving the days PRIOR to the dreadful holidays. By the time the holidays come around, I try to ignore the significance of that day. This poem was published in my support group's newsletter... Just wanted to share.
"A Mother's Day Ode"
I am your mother, but you, my child, I cannot hold.
It'll get easier with time, or so I'm told.
People may forget that I am your mother.
I'm part of a secret club we only share with one another.
But that doesn't diminish my love for you.
I think of you the whole day through.
I wonder what you're doing, my Precious Little One.
We are connected by an Infinite bond which cannot come undone.
I will not let Death tear us apart.
I promise to always keep you alive in my heart.
~ by Susan Mosquera
M.E.N.D. stands for Mommies Enduring Neonatal Death and this faith-based organization was started by a mother who lost her son to stillbirth. They have been a lifesaver for me - every time I felt like I was going crazy with grief I learned my emotions were the norm among my support group mothers. Their newsletters are filled with articles written by BLMs in different stages of grief, some whose grief is fresh and some moms who continue to keep their babies' legacy alive. My favorite theme is the Sept/Oct 2009 issue regarding our changing identities. Here is the link for more articles.
"A Mother's Day Ode"
I am your mother, but you, my child, I cannot hold.
It'll get easier with time, or so I'm told.
People may forget that I am your mother.
I'm part of a secret club we only share with one another.
But that doesn't diminish my love for you.
I think of you the whole day through.
I wonder what you're doing, my Precious Little One.
We are connected by an Infinite bond which cannot come undone.
I will not let Death tear us apart.
I promise to always keep you alive in my heart.
~ by Susan Mosquera
M.E.N.D. stands for Mommies Enduring Neonatal Death and this faith-based organization was started by a mother who lost her son to stillbirth. They have been a lifesaver for me - every time I felt like I was going crazy with grief I learned my emotions were the norm among my support group mothers. Their newsletters are filled with articles written by BLMs in different stages of grief, some whose grief is fresh and some moms who continue to keep their babies' legacy alive. My favorite theme is the Sept/Oct 2009 issue regarding our changing identities. Here is the link for more articles.
Thursday, May 5, 2011
What are you doing for Mother's Day?
There are always posts I want to write but I find myself staying occupied with other things somehow. I ask myself am I sounding redundant? Didn't I go through these feelings all last year? However, things are surely different this time around. I know my right to grieve this year unlike last year I tried to mask my sadness with my smile.
I don't have any relatives to validate me as a mom on Mother's Day. I received one card from a friend who didn't lose a child but wanted to express compassion. It was sweet. I find myself at peace and in deep comfort knowing there are other moms from my local support group as well as blogging BLM's around the world feeling what I feel. My husband and I didn't do the usual dinner for his mom last year. I don't think she knew that NEED and LONGING I had for people I love to acknowledge the grief I dealt with. So another year of Mother's Day is coming around here in the U.S. I don't expect much from my family again but I told my husband with humor how I wanted to be acknowledged at least by him on Mommy's Day - "I am Joey's mom so buy me a gift!" I will celebrate my precious daughter and the special relationship I have with her that will be ongoing.
Frankly, I wanted to avoid being around family but we had no choice with the timing of it. My mom in law is going through so much herself taking care of her mother. We hope we can encourage her Sunday with BBQ ribs for lunch. I don't know what I will feel that morning. Sad, happy, lonely? Church is out of the picture... not because I think I will lose it if I see babies (I think I am pass that but who knows)... I think it's just my act of mourning for my daughter's absence.
If you are a BLM, I am curious to see what you are doing this year for Mother's Day. Please feel free to comment.
Orkut Myspace Mothers Day Comments & Graphics
I don't have any relatives to validate me as a mom on Mother's Day. I received one card from a friend who didn't lose a child but wanted to express compassion. It was sweet. I find myself at peace and in deep comfort knowing there are other moms from my local support group as well as blogging BLM's around the world feeling what I feel. My husband and I didn't do the usual dinner for his mom last year. I don't think she knew that NEED and LONGING I had for people I love to acknowledge the grief I dealt with. So another year of Mother's Day is coming around here in the U.S. I don't expect much from my family again but I told my husband with humor how I wanted to be acknowledged at least by him on Mommy's Day - "I am Joey's mom so buy me a gift!" I will celebrate my precious daughter and the special relationship I have with her that will be ongoing.
Frankly, I wanted to avoid being around family but we had no choice with the timing of it. My mom in law is going through so much herself taking care of her mother. We hope we can encourage her Sunday with BBQ ribs for lunch. I don't know what I will feel that morning. Sad, happy, lonely? Church is out of the picture... not because I think I will lose it if I see babies (I think I am pass that but who knows)... I think it's just my act of mourning for my daughter's absence.
If you are a BLM, I am curious to see what you are doing this year for Mother's Day. Please feel free to comment.
Orkut Myspace Mothers Day Comments & Graphics
Sunday, April 24, 2011
Easter
My Little Joey,
Today was cloudy and dark for the most part of the day. I know the day you were born the weather was so dark and I remember listening to the raindrops in that silent room.
Mommy and Daddy miss you more over Easter. I try to be happy because I know that one day I will see you again. Easter reminds me you are okay; you're with Jesus. Happy 2nd Easter in heaven, Joey.
Love you and miss you so much!! Hugs and kisses!
Love,
Mommy
Today was cloudy and dark for the most part of the day. I know the day you were born the weather was so dark and I remember listening to the raindrops in that silent room.
Mommy and Daddy miss you more over Easter. I try to be happy because I know that one day I will see you again. Easter reminds me you are okay; you're with Jesus. Happy 2nd Easter in heaven, Joey.
Love you and miss you so much!! Hugs and kisses!
Love,
Mommy
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