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Tuesday, April 20, 2010

Love and Hate Relationship with God

I have been reading Nancy Guthrie's Holding on to Hope and Philip Yancey's Disappointment in God. I knew that God had been my only stability under the dark circumstances. It just didn't make sense to me that He could "allow" this to happen in His Sovereignty. I had to talk myself through some irrational thoughts that came to my head. Was this a punishment from God for something? Did God have to teach me something? If this was a way of teaching a lesson, I thought it was the most horrible way to teach a lesson... Sometimes the Christian cliches like God had a plan for John and me felt like blah, blah, blah. We weren't ready to hear all that right after losing Joey.
Nothing in my mind made sense about God. I knew that I loved Him but I also felt so much anger towards God because I tried to understand what was going on. I was hurt by the unfairness of life. I don't think that I can ever summarize my conversations with Him for the past six months. I can say that Philip Yancey's book was nonjudgmental towards bitter Christians. His gentle approach made me understand that suffering does not necessarily happen for a lesson to be learned but God can turn our pain around to bring purpose from it.
God's ways are mysterious and I will never know why. I know that John and I are forever changed from this. My spirit is broken and I am taking baby steps to learn how to trust God again. Someone who mentored my way through this journey reminded me that God was able to handle John's and my anger. I may not agree with His ways but that does not change His Sovereignty. I may not always sense His love but I know that He has always loved us in spite of our anger, doubt and bitterness.

Thursday, April 15, 2010

Anger and Guilt

Anger... I remember right after losing Joey that I did not want to be angry at God. My despair from missing her quickly led me to a deep dark hole that trapped me in anger. October through January were filled with family holidays and trying to act "normal" by attending family events didn't help. I was angry at the whole world... the doctor...myself...dysfunctional parents who were pregnant at my school...at life...

For a long time I could not find closure with my last OBGYN doctor. I felt like he could've done more than send me home and not put me on bedrest/antibiotics after telling me that this was potentially dangerous. For a patient who was uneducated on PROM I was confused and I actually trusted his words. My coworker's story and other stories that I have heard after the loss confirmed that some doctors still placed their PROM patients on antibiotics and bedrest. I kept wondering what could've happened if this doctor took another approach to save my child. My unresolved anger slowly changed when I shared my story with other moms at kanalen.org, the PROM website. There were moms from UK and nationwide who shared that their doctors were quite passive also. There is no "standard care" for PROM unfortunately, especially if it happens so early before the baby is viable at 24 weeks. I felt like I was unlucky even though I didn't believe in luck. Hearing from other moms who were hurting from their trauma gave me comfort that I was not alone. This little step of venting and being understood by other women gave me some comfort.

Guilt -- There are so many things in pregnancy that I can't control but it took me a LONG time to forgive myself for my ignorance of what a premature rupture was. The first 4 months after the loss, I kept analyzing everything I ate and drank. I reviewed every activity that I did and thought it was a mistake to go to a chiropractor even if the rest of the medical professionals said that it was okay. Then it was also swine flu season... The list is endless. I was in constant despair. I felt like a failure as a mom to not be able to carry my own child to full-term and I feel like I failed as a wife to give my husband a daughter that we always wanted. I kept thinking that I should've known what the amniotic fluid looked like. I should've been more proactive to call for second, third, fourth opinions with other OBs. My mind kept rolling to the "What if's" and where Joey could've been right now if I changed one event that led all of these things to happen. Even though I knew it was unhealthy, I couldn't help wondering how and why I lost Joey. That is probably why it was harder to be around pregnant ladies because they reminded me of my feelings of failure and of my broken body.

Sunday, April 11, 2010

Joey's slide show

My husband created this video. We asked for a collection of candlelight pictures in memory of Joey this past Christmas and used these pics for the slideshow. I regret not having many pictures of her growing in me during my pregnancy. But this slideshow shows faces of family and friends who validated our Josephine whom they've never met. John and I thought it would take us a while to look at her pictures from the hospital but now I treasure those pictures so much. Like many other blogs this song "I will carry you," written by Angie Smith (wife to Todd Smith singer in Selah), was the perfect song for my little Joey. I've been reminded that it will be our duty as Joey's parents to CARRY her legacy as long as we live here on earth. I am also reminded that God who created her loves her even more than we do.

What is PROM Premature Rupture of Membrane? (click here for the PROM website)

SO what happens after you rupture? Every doctor approaches the PROM cases differently... I truly believe that there are more proactive things a doctor can do for the patient but unfortunately the OB's I dealt with during and postpartum pregnancy did not provide me with the necessary information. I searched the medical term "oligohydramnios" and it did not retrieve relevant information for me. I found out through my support group what the other term was - premature rupture of membrane. What happened to me is called preterm premature rupture of membrane since it happened prior to 37 weeks. Most babies are able to survive if PROM happens as close to full term as possible. PPROM (preterm PROM) happens to only 2 percent of pregnancies - ONLY 2 percent! It is heartbreaking to be a part of this statistics. The link above is the most resourceful website on PROM that I've found and I didn't even find it on my own. I thank the moms online who responded to my questions. Kanalen.org was started by a mom in Sweden who also couldn't find any info on PROM while she was pregnant and it offers many suggestions on how to proactively advocate for you and your baby during PPROM.

Sunday, April 4, 2010

Life is Short










I feel like the theme throughout my life has been "life is short." My adoptive mom passed away when I was 11 years old after fighting leukemia through chemotherapy. My grandma or "hal-muh-nee" in Korean whom I became very close to also passed away while I was in college. Although my mom and I didn't have the best mom-daughter relationship, I missed her while carrying the baggage of our unreconciled relationship. It was hard to visit my mom's grave at times because my anger would resurface. This past spring break John and I went to see my adoptive dad and mom's grave without Joey. It was another step of grief for me. The least I could do was show him the memorial card that we made over Christmas and it had Joey's footprints on it. My dad is a retired sergeant major so he never showed much emotions with me but this time he briefly showed his sentimental side by whispering "Bless her heart." Then of course he changed the subject because he didn't want to cry. After losing my little girl, I realized that life was too short to stay angry at my parents for the mistakes they've made in the past. Death feels so near - not knowing when I will lose another loved one again. It was reassuring to see my dad "happy" and make the most of his life at 72 years of age.
Then there is our daughter who lived her short life for 21 weeks under my heart. We went to Joey's memorial site yesterday for the Easter weekend. I could only be grateful that she's in heaven because of the Cross...

Wednesday, March 31, 2010

Josephine's Name on the Australian Beach

There is an Australian couple who started writing names of lost babies on the sand of their closest beach. They lost their baby also and started this ministry. Their blog is http://namesinthesand.blogspot.com/

I just received this yesterday...What a glimpse of heaven it is! This is a reminder from God that Joey is really there enjoying the beauty beyond my understanding.



Joey's Story

 John and I have traveled through a maze of charting my temperature every morning, clomid, 2 IUIs, THEN we found an RE who did a laparoscopy around March 2009. The laparascopy revealed endometriosis which the RE suspected. This was all within 2 and a half years of trying to conceive. I did my 3rd IUI after the laparascopy in May 2009 wondering if this would work - I remember feeling so exhausted from everything and by this time I was tired of hoping. Then the first Friday of June my pregnancy test came out positive. We were blown away by our FIRST pregnancy test that showed positive.
Thinking about when and how everything happened is the most difficult part. I suffered from sciatica on 13 weeks of pregnancy. I've had back pain before but that was by far the most painful. I was so focused on getting my back treated with physical therapy, chiropractic, and even gentle acupuncture. With sciatica and limited sleep from the chronic pain I was in fatigue. My memories of how I ruptured my membrane is blurred. It feels like a bad dream. I must have started leaking around who knows 18 weeks? It's hard to discern your fluid from discharge when you don't see the difference or when you feel "fine."

 John and I were ready for the 20th week checkup. We were told that our baby was a girl at 13 weeks and the 20th week sonogram confirmed it. Then the sonogram technician had a grave look and said that she would call in the OB. We were told that I had total previa (placenta completely covering the cervix) and that the amniotic fluid was low. I did not know how serious this was. I remember feeling uneasy about Joey looking cramped from the low fluid. The OB kept asking me if I had completely wet myself and I said that I didn't recall anything like that except for slightly more fluid than the discharge. The OB did a bacteria test which came out negative. I didn't know what questions to ask and I didn't want to panic. I remember feeling anxious after the doctor referred me to the perinatologist and by stating that this was "potentially dangerous." I cried in the restroom not knowing what to think... My husband stayed calm for me and we both tried to be rational by telling ourselves that we needed to wait for the specialist to tell us what exactly was going on. We had to wait another week before we saw the perinatologist. On my next appointment I was told that the fluid was low - AFI (amniotic fluid index) was a 3 or 4. The blood flow was not flowing properly to the placenta. I was placed on bedrest and antibiotics. He didn't say anything about miscarrying. I wonder if the specialist knew that I had a high risk of losing Joey - he has probably dealt with so many parents who refused to terminate their pregnancies. I guess it wouldn't have made a difference for me - I would have kept trying to keep her as long as I can regardless of what the doctor said.

Even during bedrest I kept losing little bit of fluid in any position that I was in - sitting to laying down. The 3rd day after seeing the specialist I got ready for bed and started to feel slight cramping. The bleeding started to scare me - we decided to go to ER... Whether it was persistent denial or optimism, I still couldn't imagine losing our daughter. We waited 2 hours with the nurses trying to find the heartbeat before the ER doctor arrived. When the doctor showed us the sonogram and said that there was no heartbeat and no fluid left I think that I blacked out screaming. John and I just held each other and cried through the darkest moment of our marriage... Little did I know that there was a Christian nurse on the other side praying for us.

I remember asking for a C-Section out of fear of delivering - I was NOT ready to deliver but the doctor didn't recommend a C-Section for a  small baby. However, my body responded well to inducing and epidural. Within 12 hours Joey was born sleeping on October 9th, 2009, around 5pm. John and I were in a stage of shock - we were heading towards a journey of doubt, grief, and anger....